• This is a research study. • The purpose of the study is to help investigators consider how to advance studies on existing and new treatments for anorexia nervosa. • Participation is completely voluntary and you can withdraw at any time. • It should take no more than 10 minutes to complete the survey. • There are no direct benefits to you for completing the survey. • You may be uncomfortable answering some of the questions. You can skip any questions you don't want to answer. • None of your personal information will be collected. • Contact Emmily Hovhannisyan with any questions (ehovhannisyan@mednet.ucla.edu).
1b. If you are currently diagnosed with, or recovered from, anorexia nervosa, are you between the ages of 21-65?
Yes
No
1c. If you are the parent of someone currently diagnosed with, or recovered from, anorexia nervosa, is your daughter/son currently between the ages of 21-65?
Yes
No
2. What is (or was) the duration of your or your daughter/son's anorexia nervosa (in months)?
Please enter the number of months.
3. Have you/your daughter/son ever been admitted to hospital as a result of anorexia
Yes
No
If so, how many hospital admissions?
If so, how long was the longest hospitalization (in months)?
Please enter the number of months.
4. What treatment(s) have you received?
Medication
Psychological therapy
Dietetic
Group therapy
Medical inpatient hospitalization for realimentation (nutritional feeding)
Other medical treatments
Medical inpatient hospitalization for realimentation (nutritional feeding)
6. At their most severe, how debilitating were the symptoms of AN?
7. At this time, do you want yourself (or your child) to be treated?
Yes No
8. Do you believe that currently available treatments can effectively treat the full range of anorexia nervosa symptoms?
Yes No
Transcranial magnetic stimulation (TMS)?
Transcranial direct current stimulation (tDCS)?
Deep brain stimulation (DBS)?
11. Are you aware that deep brain stimulation is an FDA-approved treatment for obsessive compulsive disorder (OCD)?
Yes No
12. How open would you feel toward deep brain stimulation as a treatment for anorexia nervosa, if there was a chance it could improve symptoms (0-100% open)?
13. What is the severity threshold of anorexia nervosa symptoms that you believe would warrant deep brain stimulation treatment?
Please enter a number from 1 to 100. 1 = mild symptoms/mildly debilitating, = extremely debilitating/life threatening
Please enter a number from 1 to 100.
14. What degree of likelihood in terms of at least partial symptom improvement would help you feel comfortable entering into a trial, or your daughter/son entering a trial, for deep brain stimulation for AN?Please enter a number from 1 to 100. 1 = It only needs a 1% likelihood of helping, 100 = It needs a 100% likelihood of helping
Please enter a number from 1 to 100.
15. In your opinion, what degree of symptom improvement from deep brain stimulation would warrant it as a treatment for anorexia nervosa?Please enter a number from 1 to 100. 1 = It only needs to improve symptoms by 1%, 100 = It needs to improve symptoms by 100%
Please enter a number from 1 to 100.
16. Do you have reservations about entering into a trial of deep brain stimulation for anorexia nervosa, or reservations for your daughter/son?
No reservations and willing to enter
Some minor reservations but willing to enter
Major reservations but open to learning more
Major reservations that would prevent entering
Please list your reservations.
Please list the following:
Please list your reservations.
Please enter the number of years.
Please enter the number of years.
18. Hypothetically, how long (in months) do you think should be optimal duration of a trial of deep brain stimulation for anorexia nervosa, to fully assess its effectiveness?
Please enter the number of months.
19. If you or your daughter/son were in a clinical trial for deep brain stimulation for anorexia nervosa, how often per month would you or your daughter/son be willing to come in for clinical visits?
0-1
1-2
2-3
4 or more
20. If you were asked to take photos (using your phone) of every meal you ate over 16 months, and share them with the research team, what percentage of meals do you think you/your child would be able to record in this way?
21. In your opinion, what do you think would help patients and their parents feel more comfortable if they or their daughter/son are undergoing a trial of deep brain stimulation for anorexia nervosa? Please list.
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